Month: August 2018

I don’t work a Wednesday as my parents have commitments on a Wednesday, so when returning to work from maternity leave, I took a Wednesday off.

I kept this day off when my son started school on the advice from my mum. Our son is hard work so she advised keeping the day off and using it to catch up with washing/shopping etc and to have a time out day.

I don’t think I make the full use of the day that I should. I run about shopping when I should make sure I keep part of the day to myself, even if it’s just to sit on my bum watching TV.

When my son is back as school, I am going to plan my Wednesday better. So far, the first week me and my mum are going to the cinema, and the second week I have booked a spa day!

So far so good!

Our son attends a trampoline class for an hour every Wednesday night. He loves his trampoline so we started this class through Glasgow Club Sports as we knew he would love it. He has done 3 sessions of 10 week blocks and is almost finished the 4th block.

Someone from the sports club called me this morning. There are 2 weeks left of this block and they asked if daddy could go in to the class to help support the instructors, as our son runs about alot when he isn’t on the trampoline, and they need a bit of help. We chatted a bit about it, and though she didn’t say he couldn’t go to the class, I got the impression that is what she was trying to say.

They know our son has a diagnosis and have been fully aware since the start, we have never had any problems. I phoned my husband to talk about it. Daddy takes him to the class and said the girls in this block aren’t as good as previous instructors. We pay for him to attend the class, it’s a small group of similar age. They should have something for them to do when it’s not their turn. He wasn’t happy.

I was really upset after this call. Is this the start of people telling us he can’t do things?

I had already booked the next block, so I called and cancelled it. Need to think of something else for him to do and maybe try trampolining again in a few years.

His teacher has said we should try drama as he dramatises everything! That is something I will look into once his speech and understanding improves a bit more.

When I went to pick my son up after my work yesterday, my dad told me his friend had popped in and my son was totally fine.

My dad’s friend arrived when my dad and son were out a wee walk, so was in the living room when they got home. My dad’s friend knows about the diagnosis. He didn’t look at my son, just chatted to my dad and let my son go to him. He made no fuss of him at all, and it worked! My son wasn’t uncomfortable, it just took him a minute to get used to the new person.

Have we cracked it?????

Had my son known someone new was in the house, he wouldn’t have gone in. By making no fuss, it allowed him to take in what was going on.

This is our new plan. No preparation and no fuss. Let’s see how this works…….

Daddy was at a concert tonight in Edinburgh. My parents called earlier to see if we wanted to join them and go out for dinner, sounds good!

Dropped daddy at the train station at 3pm, then headed to my parents. We spent a couple of hours there, then headed to the Chinese restaurant we like. It was a lovely afternoon. In the restaurant I had to give him my phone for a bit to let us eat our starters. But then he ate all his dinner and made us all laugh being silly.

I know that when daddy is out, he doesn’t go to his own bed. I am used to it now. I know eventually that will change, but for now I go with the flow. Secretly I love it when he is in beside me, and it is rare that it happens so I am enjoying it while I can!

The only problem is, it takes him ages to fall asleep it was almost 11pm before he finally fell asleep!! Do you know what though? I didn’t care!

Image credit Daddy and Mummy Quotes

Today was sports day at school. I asked him last night if he wanted me to go but he said no way! I didn’t push it. I really wanted to go but I knew he wouldn’t like me there and my priority is making him feel comfortable, so I wasn’t going.

I asked again this morning and again he said no. I didn’t make a fuss.

When the bus picked him up I said I wouldn’t be there. They told me I could watch from the window. I spoke to my mum who said I had to go, I couldn’t miss it – so I went!

My plan was to watch from the window, but when all the other parents walked out, I just followed them. I got the biggest smile when he saw me, it was lovely. But then he said ‘can we go home’ and I thought, oh no, here we go! I said to him he needed to do some sports games first and luckily his teacher came over, took his hand and walked him over to the games.

He joined in a few, and I was so proud at how much he was engaging even with me there. It didn’t last long, but it was great to see him joining in. Small steps!

We went to the classroom to collect his bag and jacket, but I couldn’t find his lunch box. He started to panic followed by a major meltdown. I tried to calm him saying we would find it, I tried turning it into a game picking things up asking if it was underneath. Thankfully the head teacher popped in and she went to find out where it was – it was still in the lunch room. He was so upset. Once we got to the car he calmed down straight away, while I had a mini breakdown in the front seat!!

I couldn’t sleep last night. I was lying thinking about my son being older and on his own. We have no other children and I have a horrible feeling of him being alone.

It was like a grief crept over me.

I heard a couple of days ago that a colleague of mine had died. She was only 10 years older than me, I think this must have been at the back of my mind last night.

You just don’t know what the future holds. My job is to prepare my son for the future. So far, things for him are going well. School has been brilliant for him. His teacher called him a signing superstar – his makaton is fantastic. He loves signing. He is progressing and his development, though very slow, is moving along in the right direction.

I woke up this morning thinking I really need to take care of myself to be there for as long as I can be for my son.

A few months ago I read about a Saturday morning austism football club. We tried to take him but as soon as we parked he got so anxious and wouldn’t get out the car. He started to get really upset, so we left.

Next to the football pitches is a golf club with a lovely cafe, which I have just discovered. It was another lovely day so I thought it would be nice to go to the cafe and sit outside with a juice and cake.

I asked him if he wanted to go out for juice and a donut, of course he did, so off we went.

As soon as we drove in he got so anxious, but I told him we weren’t going to football we were going for juice and a donut. He calmed a bit but I could tell he was still really anxious.

We got him out the car ok and took a hand each to walk into the cafe. I felt him slowing down, but we kept walking not making a fuss hoping this would put him at ease, knowing he was safe.

We got in ok and I took him straight to the counter to pick a donut. He relaxed after this and we had a lovely time sitting in the sun.

Today was a good day !