We watched a show last night about how the system is failing autistic kids. My heart went out to the parents crying out for help and put on waiting lists for months on end, or getting no support at all. One parent was told her son behaved the way he did due to bad parenting. That’s appalling!
We have been so lucky – so far! I was scared initially doing the autism assessment when our son was so young, but it enabled us to set up the right schooling for him and has turned out to be the best thing we done for our son.
After agreeing to the have our son assessed, I was so scared. I tried to cancel it but the paediatrician said no, let’s do it. I’m glad she did. It was my fear stopping our son getting the help he potentially needed.
I hope we continue to receive any help we need, we have been fortunate so far. I was at a course not long after we received the diagnosis, husband had man flu so didn’t make it! Everyone was introducing themselves and giving a short introduction, with everyone saying how they are struggling to get help and support. I was embarrassed when it came to me and said so, I said we have been very fortunate with the support we have received. The course leader said not to be embarrassed, I was an example of how the system should work.
I am updating the pages on this blog with all the help and advice we have received and what I have done to get this in place.
Super Autism Mum 